Find support for all struggling with IC/BPS
Find support from others who understand your daily struggles
About My IC/BPS Support Group
My Story
I'm a family Nurse Practitioner. I had never heard of IC/BPS until I started working in urology. I started school at Yale University to get my doctorate in nursing and had to find a project I had many choices, but the fact that I had many patients who struggled IC/BPS intrigued me. I would get so angry when I heard it was "only in their heads". I started on this journey to become an expert in IC/BPS and my goal is to offer support for all of those who are struggling. By taking this journey, I hope to bring more awareness to the medical community. I can only do this by partnering with the individual who lives with this diagnosis.
My Upcoming Support Groups
This is a 6 week support group on Tuesdays. It is the first of its kind as it will be helping get more support groups for IC/BPS- this is in partnership with my Yale University Clinical Project. I would appreciate anyone who would want to join. It won't only help me, but the IC/BPS community to show Quality of Life is better with Support. It will be one of the first steps to get the American Urological Association to include support groups in their guidelines
What is Interstitial Cystitis/Bladder Pain Syndrome?
- Interstitial Cystitis/Bladder Pain Syndrome (IC/BPS) is a chronic disease characterized by symptoms of urinary urgency, frequency, bladder pain, and chronic pelvic pain in the absence of known pathology
- IC/BPS is frequently overlooked in urological and primary care settings. IC/BPS diagnosis often takes an average of 5-7 years and consultations with five physicians
Contact Us
Lorianne J. Gillis, NP
IC/BPS Support Group
Boston, Massachusetts, United States
This is not a business, just a group started by one medical professional who saw a need in the IC/BPS community.
